I HATE this disease! (and all the others)

My heart is so heavy right now. I just found out  that one of my pink sisters in Christ has a brain tumor. Most likely it isn’t a new cancer. It’s likely to be mets to the brain.  I met her through a FB group and she actually use to live in the bay area and is now residing in Colorado. Upon my diagnosis, she immediately reached out to me and gave me so much useful information and advice as I was going through my treatments. She had been NED for a few years after having a recurrence of breast cancer (stage IV/lung). She is defying the odds. I say IS because I really do believe that she will continue to defy the odds for years to come. Please say a prayer for her and her family. She is so positive, real and thoughtful-I can only hope to have half the grace is does.

This week I also found out that a high school friend who was diagnosed with breast cancer 3 years ago just found out that she has Hodgkin’s Lymphoma. I mean WTF??? AND not too long ago a fellow blogger that I follow, found out her breast cancer spread to her lungs. For those that don’t know. That is stage IV. Incurable-they say. This is some scary shizz people! There’s so much DISEASE in this world…it sickens me and hurts my heart at the same time.

Speaking of disease, have you ever heard of mitochondrial disease? Gianna and I attended a walk this morning to support a friend of mine’s daughter who has it.  She’s a co-worker of mine and since her daughter was born she searched for answers to her condition. Her daughter is the cutest & endearing little girl. To read more about mitochondrial Disease click here .

Here’s a few sentences from the website describing the disease:

Mitochondrial diseases result from failures of the mitochondria, specialized compartments present in every cell of the body except red blood cells. Mitochondria are responsible for creating more than 90% of the energy needed by the body to sustain life and support growth. When they fail, less and less energy is generated within the cell. Cell injury and even cell death follow. If this process is repeated throughout the body, whole systems begin to fail, and the life of the person in whom this is happening is severely compromised. The disease primarily affects children, but adult onset is becoming more and more common.

The physical and neurological effects can vary greatly from case to case. It’s a disease that mainly affects children but more adults every day are being diagnosed. Today I learned that every 30 minutes a child is born who has this disease! That’s a BIG number.  You know when you hear things about creating “awareness” for a disease….well, this is one that I would like for all my fellow followers to be aware of. Please take 1 minute to at least read about the disease. If your heart follows….please take another 2 minutes to donate to Kelsie’s Team. The walk was this morning but donations are still being accepted.  The walk this morning was called the Energy for Life Walk-a-thon and the team is called Kelsie’s Krusaders. To find out more info and make a donation to Kelsie please click here.

Gianna and a friends daughter walking for Kelsie!

Gianna and a friend’s daughter walking for Kelsie!

kids at kelsies walk

We actually got all the kids together for one photo! Kelsie with some of her friends!

Kelsies walk collage Kelsies shirt

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6 thoughts on “I HATE this disease! (and all the others)

  1. The Savvy Sister says:

    So sorry you are surrounded by all that. There are many people living with stage IV breast cancer successfully. Hope and prayer goes a long way.
    The lymphoma is unfortunately a risk with treatment. Anyone that had been treated conventionally for breast cancer runs the increased risk of more cancers and heart problems down the line. Thats why it’s so important to identify those that will really benefit from treatment and not just push chemo and radiation on everyone who is diagnosed “just to be sure”. There are many diagnosed where chemo and/or radiation has no effect on their cancer prognosis.
    Often when we hear of others having recurrence it allows the fear to take over in us again. This is where you need to increase your mind control increase your faith and dispel the fear. Helping others is a great way to do that as well just as you are doing.
    Thanks for the post. Sending strength…

  2. Swoosieque says:

    I remember when I was a young 20-something and cancer was something that wasn’t nearly as common as it is today. I knew that several relatives had died from it, but, other than that, I didn’t know anyone who either had cancer or had family members with it. This is so disturbing that within my – one – lifetime, cancer has grown to the point that not only is it in every family, but our friends’ families too. Kelsie has my prayers. {{{Hugs}}}

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